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Kenzie

Age: 17

Diagnosis: POTS

Other Conditions: Superior Mesenteric Artery Syndrome, Ehlers Danlos Syndrome, & Raynaud’s Syndrome

What was your journey to getting a diagnosis like?

A lot of tests, and misdiagnosis, medications that did not work, and I actually went in to confirm a different diagnosis and came out with the POTS and Raynaud’s diagnosis.


What is your biggest struggle with Dysautonomia?

The dizziness messing with everything I do it makes it hard to function.

What would you like to say to the public at large about your situation and Dysautonomia?

My life is hard but I would not change it because it has made me who I am and I have met some amazing people along the way.

What advice would you give to a newly diagnosed patient?

Your life will be hard, and there will be times when you will want to give up, but remember life goes on and there is at least one thing in your life that makes life worth living. For me, that is my mom, grandma, and pets.

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