Who We Are:​

Dysautonomia SOS is an organization focused on

SEARCHING OUT SOLUTIONS.  We are completely volunteer

run. We hope you will join us in our mission and attaining the

goals we've set forth to impact those affected by dysautonomia. ​

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We are committed to working with patients, families, caregivers, friends, and medical professionals to best serve the dysautonomia community. We are honored and excited to also work with other organizations that share our same ethics, goals, and the commitment to our shared interests. We believe that working together, we can affect amazing change and improve the lives of everyone affected by dysautonomia.

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Mission Statement​:​

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Dysautonomia SOS empowers people impacted by Dysautonomia.  We do this by raising public awareness and providing educational materials to patients and medical professionals.​

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Goals:

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1. Increasing public awareness, decreasing diagnosis time, and improving treatment options by providing resources and information for all dysautonomia conditions, while specifically focusing on Postural Tachycardia Syndrome (POTS), syncopal disorders such as Neurally Mediated Syncope, and chronic Orthostatic Intolerance.​

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2. Working with the dysautonomia community to provide medically accurate and up to date information online as well as printable brochures. ​

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3. Empowering and educating patients, caregivers, medical professionals, and the public worldwide by providing credible, medically reviewed solutions for everyday life.