top of page

Clinical Trial and Research Study Information​

We've compiled informative articles, links, and ways to get involved in Dysautonomia research and clinical trials below.  Since Dysautonomia is a relatively new area of study, especially POTS, it is very important that as many people as possible participate in studies so researchers can learn more about these conditions.​ ​​

What are Clinical Trials & Why They Are Important

How To Join The National Registry

Here are links to some excellent articles on what clinical trials are and why they are so important for us all:

 

Join the NIH Rare Disease Contact Registry:

​

The RDCRN Patient Contact Registry is a method by which patients with rare diseases can register themselves with the RDCRN in order to be contacted in the future about clinical research opportunities and updates on the progress of the research projects. The contact registry is anonymous and free of charge.

 

Click HERE for more info.

 

Current Clinical Trials:

POTS and Associated Conditions

From the Autonomic Disorders Consortium:​

​

From Johns Hopkins:

​

  • Controlling Hyperadrenergic Activity in Neurologic Injury
    Traumatic Brain Injury; Dysautonomia (Not yet recruiting)
  • Study to Assess Droxidopa in Treatment of Neurogenic Orthostatic Hypotension in Patients With Parkinson's Disease
    Orthostatic Hypotension; Parkinson's Disease (Recruiting

From National Institutes of Health (search Postural Tachycardia Syndrome):

​

  • Cognitive Dysfunction in Postural Tachycardia Syndrome
  • Controlling Hyperadrenergic Activity in Neurologic Injury
    Traumatic Brain Injury; Dysautonomia (Not yet recruiting)
  • Local Vasoconstriction in Postural Tachycardia Syndrome
  • The Renin-Aldosterone Axis in Postural Tachycardia Syndrome
  • Peripheral Dopamine in Postural Tachycardia Syndrome
  • Assessment of Vascular Endothelial Function in Postural Tachycardia Syndrome
  • Breathing Device in Postural Orthostatic Tachycardia Syndrome (POTS)
  • Dietary Sodium's Effect on Urinary Sodium and Dopamine Excretion in Patients With Postural Tachycardia Syndrome
  • Dietary Salt in Postural Tachycardia Syndrome
    Condition: 
  • Autonomic Nervous System and Chronic Fatigue Syndrome
  • Intravenous (IV) Saline and Exercise in Postural Tachycardia Syndrome (POTS)
  • Sleep Actigraphy in Postural Tachycardia Syndrome (POTS)​
    ​
  • Head Circumference Growth in Children With Ehlers-Danlos Syndrome Who Develop Dysautonomia Later in Life
  • Recruiting  Tilt Table With Suspected Postural Orthostatic Tachycardia Syndrome (POTS) Subjects
  • Recruiting  Objective Sleep Disturbances in Orthostatic Intolerance
  • Recruiting  Effect of Exercise in OI
  • Unknown †  Cardiovascular Effects of Selective I(f)-Channel Blockade
  • Recruiting  Pathophysiology of Orthostatic Intolerance
  • Recruiting  Treatment of Orthostatic Intolerance
  • Palpitations and Tachycardia in Fibromyalgia Syndrome

​

US Dysautonomia Research Locations:

bottom of page